Data: analysis, sharing, management, harmonization
SecureData4Health (SD4Health) is a secure cloud infrastructure for the analysis and sharing of epi/genomic and health data. By establishing a database platform on SD4Health, we are addressing the needs of our members who have large datasets, but lack the computational and analytical infrastructure required for biomedical research. SD4Health’s infrastructure (10,272 CPU cores, 60 GPUs, 23.7 PB of online storage, security policies and software, privacy protection, all integrated into existing data centers) will pave the way for major advances in supporting a range of research and translational projects that generate data, but currently lack adequate computational and analytical resources. The SD4Health platform will support current and future projects, amplify our ability to use and share new and existing genomic and health data, and foster clinical investigations and biomedical research.
The Maelstrom platform aims to 1) optimize the use of research data by providing access to an international catalog of studies and variables, and 2) facilitate the management of collaborative research projects by offering free access to software and methodologies to harmonize, integrate and document research data easily and cost-effectively. These tools have been developed over the past 20 years by a group of researchers led by Dr Isabel Fortier. ODISÉ network researchers conduct large-scale birth cohort studies, and will collaborate with the Maelstrom team to optimize the use of research data and data acquisition models. This collaboration will, for example, make it possible to establish recommendations on the essential information to be collected and the procedures recommended for these cohort studies covering the periconception, pregnancy and childhood periods.
Best practices in research
Community & EDI Evaluation
Initial diagnosis of EDI & community needs: SCIKOOP assesses your project to identify opportunities for collaboration with inclusion in mind.
Customized Strategy
Recommendations and action plan: SCIKOOP crafts a personalized strategy to seamlessly integrate inclusion at every step of your research or innovation.
Comprehensive Support
Implementation and monitoring on the platform: Throughout your journey, SCIKOOP offers guidance, specialized tools, and technical assistance to ensure your success.
Scikoop Certification
Certification & recognition: A distinctive recognition for research teams and organizations demonstrating strong commitment to responsible and inclusive research practices.
CHILD-BRIGHT’s mission is to foster a movement for change by including partners with lived experience (PLE) on research teams, integrating research findings into practice and policy to improve them, and providing a better future for children and families.
Since 2016, CHILD-BRIGHT has developed a wide range of resources that can be useful to parents who are partners in patient-centered research and/or childhood disabilities.
